耶鲁护理学院院长尚普和近 50 年的临终关怀

In many ways, Pearce’s personal history dovetails with Connecticut Hospice and YSN. Her father was instrumental in securing the current waterfront property 20 years ago. He set up a named scholarship at YSN in honor of her mother, alumna Margaret Perry Pearce ’45 MSN.

“I was brought up to think that the best thing you could be in life was a Yale nurse,” said Pearce. “My mother went to YSN and taught there and was also a psych Army nurse. She must have known Florence Wald.”

According to Pearce, when Wald was exploring hospice care, doctors in America thought it was their job to cure people, not help them die. Physicians did not use the word “cancer” when talking to patients, and children were not generally told what was happening to their parents.

“Florence appears to have been a force of nature,” Pearce said. “She was willing to go toe to toe with doctors, and her first staff included a surgeon and an oncologist but also ministers and a nun. And today hospice is a very nurse-centric place: the nurses are providing a service that no one else can.”

To people who might think of her job as a bit melancholy, Pearce is adamant in her opposition.

“People always say to me ‘This must be so depressing.’ But this place is anything but depressing! It is a rare thing to be able to provide joy at the end of someone’s life,” Pearce said. “My father died here, and I’ve welcomed many patients that I know from the community. I’ve seen them plan wonderful deaths where our nurses and staff take care of everything the patient has chosen to do. We feel our job is to give closure to people in whatever form that takes.”

Many YSN students have taken clinical placements at Connecticut Hospice over the years, including during the COVID-19 pandemic. Pearce said students are well-placed to come away from the experience with an appreciation for the unique role hospice nurses play.

“My favorite thing about hospice care is that if someone needs help and it’s too late for anyone else to help them, our nurses can still make their lives better,” Pearce said. “We don’t want our patients to die alone, afraid, or in pain. We make sure that doesn’t happen.”

全文翻译（请注意）

哈佛大学卫生所学院 (YSN) 展望 2023 年的百年校庆，第二个里程碑刚刚相似第二年的五年大关：在 YSN 主任委员弗洛伦斯·艾克 (Florence Wald) 的努力下，临终关怀在加拿大的预见到。

Florence Schorske Wald '41 MSN, RN, MN, MS, FAAN, 是全国女权名人堂成员，被公相信加拿大卫生境遇传奇所学院，并于 1995 年得到哈佛大学大学荣衔文学士。她领导成员学校1959 年至 1966 年转任其第四任主任委员，并将临终关怀运动从苏格兰来到加拿大，并于 1974 年在佛蒙特州罗彻斯特的 Albertus Magnus 所学院成立了第一个临终关怀政府部门。

Barbara L. Pearce 目前转任佛蒙特州特尔福德亚历山德里亚临终关怀之前心的临时首席执行官，该设施源于多达 50 之前主要为白血病病症成立的第一个单位。它最多达之后得到了鲜明的专利权组合：它是该国第一家也是唯一一家得到许可的住院治疗、家庭卫生和急性卫生专科医院，其作为经过认证的文职姑息治疗机构的威信也设定了UIC。丹尼尔话说，艾克的影响力至今仍能敏锐地感受，无论是在当地还是在其他区域内。

“当我 2019 年开始在这里临时工时，我问医护人员们，如果我能为他们做点什么，他们但会一切都是什么，他们促请的第一件事就是米兰的雕像，”丹尼尔话说。这幅新的雕塑于去年但会合，由一位退休的临终关怀医护人员的女儿所画。

根据 Pearce 对 Wald 在 YSN 论文之前的研究，Wald 积极参与了哈佛大学大学医所学院临终关怀先驱 Cicely Saunders 博士的演讲，然后被迫跟从 Saunders 前往费城顺利进行重演。桑德斯因 1967 年在伯明翰创立圣凯瑟琳克里斯托弗临终关怀医院而受到认同，两年后得到哈佛大学大学的荣衔文学士。

在许多多方面，丹尼尔的个人历史与亚历山德里亚临终关怀和 YSN 相吻合。20 之前，她的兄长在必要措施当前的海滨资产多方面发挥了重要作用。他在 YSN 设立了一个命名奖学金，以纪念她的祖母、校友但会 Margaret Perry Pearce '45 MSN。

“我从小就相信，时光之前最难的事就是当哈佛大学医护人员，”丹尼尔话说。“我的祖母去了 YSN 并在那里教书，同时也是一名心理军医护人员。她一定了解到弗洛伦斯·艾克。”

根据丹尼尔的话说法，当艾克探索临终关怀时，加拿大的内科医生相信他们的临时工是治愈人们，而不是期盼他们生还。内科医生在与病症聊天时没有使用“白血病”这个词，孩子有时候才但会被获悉他们祖父母暴发了什么。

“米兰似乎是一股自然的力量，”丹尼尔话说。“她愿意与内科医生针锋相对，她的第一批临时工人员都有一名外科内科医生和一名肿瘤学家，但也都有部长和一名孤儿院。今天临终关怀是一个非常以医护人员为之前心的区域内：医护人员备有的免费是其他人没有备有的。”

对于那些可能会相信她的临时工有点忧郁的人来话说，丹尼尔坚决反对她。

“人们总是对我话说'这一定很感到难过。' 但是这个区域内一点也不感到难过！能够在某人灵魂的尽头备有欢乐是一件少见的事，”丹尼尔话说。“我兄长在这里去世，我参观了很多我了解到的邻里患者。我想起他们方案美妙的生还，我们的医护人员和临时工人员但会照顾患者选择做的一切。我们相信我们的临时工是以任何多种形式为人们备有封闭。”

多年来，许多 YSN 师生在亚历山德里亚临终关怀之前心顺利进行了病理实习，都有在 COVID-19 大广为流传期间。丹尼尔话说，师生们可以很好地从互动之前放出来，欣赏临终关怀医护人员所客串演出的鲜明角色。

“我喜欢临终关怀的一点是，如果有人需要期盼，而其他人期盼他们为时已晚，我们的医护人员仍然可以让他们的境遇越来越很好，”丹尼尔话说。“我们不期盼我们的患者忧郁地、害怕或痛苦地死去。我们保障才但会暴发这种情况。”

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